Cloud of Witnesses

Meeting Blessed Francis Xavier Seelos

I was first introduced to today’s Saint, Blessed Francis Xavier Seelos, in 2005. That winter, I was hospitalized for chronic lung failure, a result of Duchenne muscular dystrophy for which I required a tracheostomy and ventilator. It was a rough time for me for sure. Thankfully, my family and good friends came to visit me …

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Uncategorized Blazes

Duchenne Awareness Day

in necessary for muscle development. It progressively weakens all the major muscles in the body, including the heart and lungs. Because today is Duchenne Awareness Day, I thought it would be fitting to share a bigger picture of how Duchenne muscular dystrophy has affected my 45 years of life. While some of you may have …

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